Social and cultural taboos frequently prevent meaningful conversation around gendered health and wellbeing, across the globe and to varying degrees. Safe spaces can offer potential avenues to nurture non-judgmental environments for dialogue and opportunities for learning to talk through taboos. To this end, we curated an online safe space on WhatsApp---with 35 participants of Indian origin---to facilitate conversations around diverse topics related to gendered health and wellbeing. We observed participant activity for two weeks, before conducting in-depth interviews with 10 participants to better understand their experiences of engaging within the WhatsApp group. We use the lens of Legitimate Peripheral Participation to examine how peripheral and core members of the community drew on new audiences and support systems as they questioned existing structures upholding taboos. We discuss scaffolding mechanisms that could enhance learning about taboo topics in online safe spaces, and the tensions of anonymity in such learning spaces.
Trauma-informed design is an important yet challenging area due to required expertise for careful engagement with the vulnerable and traumatized person, particularly with children. While technologies have the potential to generate value for the person with experience of trauma, the risk of exposing them to additional trauma due to research and design has ethical implications. We explore this space by engaging with therapists and social workers as dyads of proxies for parents and children with a history of trauma. We conducted a study as a participatory workshop with proxies to understand how technology could support parents in coaching social-emotional learning during episodes of high intensity emotion and difficult behavior by the child. Our findings identified design qualities to embed in SEL technology, and three roles that parents can play in implementing SEL strategies at home. We contribute a set of seven methodological guidelines for dyadic trauma-informed participatory design with proxies.
Crowdsourcing in China is a thriving industry. Among its most interesting structures, we find crowdfarms, in which crowdworkers self-organize as small organizations to tackle macrotasks. Little, however, is known as to which practices these crowdfarms use to tackle the macrotasks, and this goes hand in hand with the current practice of the HCI research community to treat all forms of complex crowdsourcing work as practically the same. However, macrotasks differ substantially regarding structure and decomposability. Treating them under one umbrella term - macrotasking - can lead to an imprecise understanding of the workforce involved. We address this gap by examining the work practices of 31 Chinese crowdfarms on the four main macrotask types, namely: modular, interlaced, wicked, and container macrotasks. Our results confirm essential differences in how these nascent crowd organizations address different macrotasks and shed light on what platforms can do to improve the uptake of such work.
Personal health tracking has long been a topic of investigation in the HCI community. There is an emerging class of apps that support gender transition, which we term transition-tracking apps. However, little work has been done examining the use and impact of such apps. We aimed to address this gap by conducting an interview study with sixteen participants who are currently undergoing different forms of gender transition. We provide an understanding of transition tracking habits, the usage and potential of transition-tracking apps in the context of transition support technologies, and provide design suggestions and open areas of research.
Trans technology - technology created to help address challenges that trans people face - is an important area for innovation that can help improve marginalized people’s lives. We conducted 104 interviews with 115 creators of trans technology to understand how they involved trans people and communities in design processes. We describe projects that used human-centered design processes, as well as design processes that involved trans people in smaller ways, including gathering feedback from users, conducting user testing, or the creators being trans themselves. We show how involving trans people and communities in design is vital for trans technologies to realize their potential for addressing trans needs. Yet we highlight a frequent gap between trans technology design and deployment, and discuss ways to bridge this gap. We argue for the importance of involving community in trans technology design to ensure that trans technology achieves its promise of helping address trans needs and challenges.
While domestic violence (DV) is prevalent in all socioeconomic settings, identity highly impacts how one experiences and recovers from abuse. This work examines US-based Muslim women's challenges when seeking help and healing from domestic violence. Through participatory interviews with 23 participants within the DV ecosystem, we find that victim-survivors' autonomy is compromised throughout the abuse, within their immediate communities, and when involving the criminal justice system.
To address such harms, we adapt a survivor-centered transformative justice (SCTJ) approach, a framework to discern individual and systemic harm, to understand how to design alongside victim-survivors, and to focus on victim-survivors' autonomy. We explain under what conditions an SCTJ approach may be productive for designers. We use insights from our interviews to highlight intervention areas for reducing harm, repairing harm, and promoting healing for victim-survivors. Lastly, we offer guidelines to design for harm reduction, accountability, and systemic change.