Best Paper
In serious illness contexts, caregivers are often tasked to make values-based decisions for patients without decision-making capacity. However, most existing values elicitation tools are designed for patient use, which might not address caregivers’ unique needs. In this study, we developed five low-fidelity prototypes as probes to explore the design requirements for caregiver-facing values elicitation tools with 12 caregivers. Our findings indicate that caregivers need more support in reconciling various conceptions of patient values and their own values. Caregivers wanted to use the tools to build consensus among family members, but may prefer to use the online tool on their own rather than share the interface with other caregivers. Lastly, there is a prevalent lack of understanding of the importance of values in decision-making. From these insights, we draw some implications for the design of online tools for caregiver-facing values elicitation.
doi.org/10.1145/3613904.3642214
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