Peer support and caregiving

会議の名前
CHI 2023
Chronic Care in a Life Transition: Challenges and Opportunities for Artificial Intelligence to Support Young Adults with Type 1 Diabetes Moving to University
要旨

Self-managing a chronic condition involves adapting management strategies to life's continual change. Among these changes, moments of significant life transition can render routine self-management practices obsolete without significant modification to the new context. In this study, we examine one significant life transition for young adults living with Type 1 Diabetes, the move from home to university, to understand how near future AI-enhanced technologies might provide opportunities and challenges for supporting care. From interviews with 24 students in the UK who had moved away from their childhood homes, we used sensemaking literature to frame the process of initial disruption to the rebuilding of self-care practices around a new lifestyle and support networks. By studying a significant life transition, we uncover implications for the design of T1D technology, particularly closed-loop systems, through AI enhancements and human-centred design approaches, then extrapolate for other significant life transitions and chronic conditions.

著者
Sam James
University of Bristol, Bristol, United Kingdom
Miranda Armstrong
University of Bristol, Bristol, United Kingdom
Zahraa Abdallah
University of Bristol, Bristol, United Kingdom
Aisling Ann O'Kane
University of Bristol, Bristol, United Kingdom
論文URL

https://doi.org/10.1145/3544548.3580901

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Children with ADHD and their Care Ecosystem: Designing Beyond Symptoms
要旨

Designing for children with ADHD has been of increasing interest to the HCI community. However, current approaches do not adequately involve all relevant stakeholders, and primarily focus on addressing symptoms, following a medical model of disability that is extrinsic to neurodivergent interests. To address this, we employed a multi-step, multi-stakeholder approach (N=31). First, we conducted 1) interviews with children with ADHD and their care ecosystem followed by 2) a co-design pilot with one child with ADHD and his therapists and an interview with a UX designer and an occupational therapist. We then employed 3) co-design sessions with neurotypical children and children with ADHD, and 4) a focus group with their therapists. We identified communication and reflection as key concepts for empowering and promoting the well-being of children with ADHD and their care ecosystem. We contribute design implications for future systems aiming to promote the overall well-being of this population.

著者
Evropi Stefanidi
University of Bremen, Bremen, Germany
Johannes Schöning
University of St. Gallen, St. Gallen, Switzerland
Yvonne Rogers
UCL , London, United Kingdom
Jasmin Niess
University of St. Gallen, St. Gallen, Switzerland
論文URL

https://doi.org/10.1145/3544548.3581216

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Exploring the digital support needs of caregivers of people with serious mental illness
要旨

In low-and middle-income countries like India, people with severe mental illness (PSMI) rely on their families as a primary source of care, given the lack of support from healthcare systems. The demanding nature of caregiving places significant physical and mental demands on caregivers, who are the primary source of support to PSMI. We explore how caregivers in under-resourced settings can be better supported through everyday digital technologies. We conducted interviews with caregivers (from urban and rural India), as well as workshops with professionals from Indian NGOs that work directly with PSMIs. We found that technology has the potential to (1) provide carer-centred support that empowers carers who experience stigma and issues with existing support networks; (2) provide support for carers to overcome barriers and progress in the recovery of the PSMI. We conclude with design considerations, proposing how an online peer community can leverage carers' expertise to actualise support provision.

著者
Farheen Siddiqui
Monash University, Melbourne, Australia
Delvin Varghese
Monash University, Melbourne, Victoria, Australia
Pushpendra Singh
IIIT-Delhi, New Delhi, India
Sunita Bapuji. Bayyavarapu
Monash University, Melbourne, Australia
Stephen Lindsay
Computing Science, Glasgow, Scotland, United Kingdom
Dharshani Chandrasekara
Monash University, Melbourne, Victoria, Australia
Pranav Kulkarni
Monash University, Melbourne, Victoria, Australia
Ling Wu
Monash University, Melbourne, Victoria, Australia
Taghreed Alshehri
Taif University, Taif, Saudi Arabia
Patrick Olivier
Monash University, Melbourne, VIC, Australia
論文URL

https://doi.org/10.1145/3544548.3580674

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Understanding the Online Social Support Dynamics for Postpartum Depression
要旨

Postpartum depression (PPD) is one of the most prevalent mental health disorders following childbirth. Mothers utilize social media and online forums throughout postpartum to seek mental health support. In this paper, we aim to gain a comprehensive understanding of the topics of naturally occurring online discussions and the online social support dynamics associated with PPD. We qualitatively analyze posts and comments from three postpartum depression support communities corresponding to well-known online social platforms (Reddit, What to expect, and BabyCenter). We discovered that the three communities share common themes of discussion that include the causes, stressors, symptoms, and coping mechanisms for PPD. Seeking both informational and emotional support through venting and storytelling was prevalent, and emotional support seeking was more common in Reddit in than the other two communities. We provide recommendations for future postpartum depression research and design considerations based on pervasive help-seeking approaches.

著者
Farhat Tasnim Progga
Marquette University , Milwaukee, Wisconsin, United States
Avanthika Senthil Kumar
Marquette University, Milwaukee, Wisconsin, United States
Sabirat Rubya
Marquette University, Milwaukee, Wisconsin, United States
論文URL

https://doi.org/10.1145/3544548.3581311

動画
Infrastructural Work Behind The Scene: A Study of Formalised Peer-support Practices for Mental Health
要旨

Peer-support has long been recognized as valuable for mental health, and has been commonly practiced online over the Internet. However, it is often reported that peer exchange online can have harmful effects, and there has been limited research on how to ensure its effectiveness and safety. Our ethnographic study of formalized mental health peer-support practices in Scotland uncovers the infrastructural work involved when setting up and managing conditions upon which peer-support can take place in an effective and safe way. We illustrate that peer-support for mental health is not only about bringing peers together to interact with each other, but also about ensuring availability, timeliness, proactive care, positivity and safety of peer-support as a service, by weaving various social, spatial and technical elements together and managing groups and their boundaries. Our findings illuminate the work behind these peer-support practices, and suggest design implications.

著者
Xianghua(Sharon) Ding
University of Glasgow, Glasgow, Lanarkshire, United Kingdom
Linda Tran
University of Glasgow, Glasgow, Glasgow City, United Kingdom
Yanling Liu
University of Glasgow, Glasgow, Glasgow City, United Kingdom
Conor O'Neill
University of Glasgow, Glasgow, Glasgow City, United Kingdom
Stephen Lindsay
Computing Science, Glasgow, Scotland, United Kingdom
論文URL

https://doi.org/10.1145/3544548.3580657

動画
Challenges and Opportunities for Interactive Technology to Support Parents of HIV-Positive Children in Ethiopia in the Disclosure Process
要旨

Fearing stigma, parents often hide their children’s HIV diagnosis from them, and postpone disclosure, in turn negatively impacting children’s well-being. Our work explores whether interactive technology can support disclosure. In the first study, we examine disclosure experiences and the role of interactive technology from the perspective of HIV-positive children and parents. Through Thematic Analysis, we highlight how disclosure is linked with parents’ own experience of HIV, and that disclosure needs to be viewed as a process. On this basis, we contribute an experience prototype that guides parents through an incremental disclosure process using interactive storytelling. In a second study, we evaluate the prototype through interviews with six parents. Leveraging Interpretative Phenomenological Analysis, we show that the prototype has potential to transform how parents understand and approach disclosure. Based on our results, we present further design directions, and discuss the (limitations of the) role that technology can play in this context.

著者
Alemitu Mequanint. Bezabih
KU Leuven, Leuven, Belgium
Kathrin Gerling
KIT, Karlsruhe, Germany
Workeabeba Taye
Addis Ababa University, Addis Ababa, Ethiopia
Vero Vanden Abeele
KU Leuven, Leuven, Belgium
論文URL

https://doi.org/10.1145/3544548.3580756

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