More than Decision Support: Exploring Patients' Longitudinal Usage of Large Language Models in Real-World Healthcare Settings

要旨

Large language models (LLMs) have been increasingly adopted to support patients' healthcare-seeking in recent years. While prior patient-centered studies have examined the capabilities and experience of LLM-based tools in specific health-related tasks such as information-seeking, diagnosis, or decision-supporting, the inherently longitudinal nature of healthcare in real-world practice has been underexplored. This paper presents a four-week diary study with 25 patients to examine LLMs' roles across healthcare-seeking trajectories. Our analysis reveals that patients integrate LLMs not just as simple decision-support tools, but as dynamic companions that scaffold their journey across behavioral, informational, emotional, and cognitive levels. Meanwhile, patients actively assign diverse socio-technical meanings to LLMs, altering the traditional dynamics of agency, trust, and power in patient-provider relationships. Drawing from these findings, we conceptualize future LLMs as a longitudinal boundary companion that continuously mediates between patients and clinicians throughout longitudinal healthcare-seeking trajectories.

著者
Yancheng Cao
Columbia University, New York, New York, United States
Yishu Ji
Georgia Institute of Technology, Atlanta, Georgia, United States
Yue Fu
University of Washington, Seattle, Washington, United States
Sahiti Dharmavaram
Columbia University, New York, New York, United States
Meghan Turchioe
Columbia University School of Nursing, New York, New York, United States
Natalie C. Benda
Columbia University, New York, New York, United States
Lena Mamykina
Columbia University, New York, New York, United States
Yuling Sun
Fudan University, Shanghai, China
Xuhai "Orson" Xu
Columbia University, New York City, New York, United States

会議: CHI 2026

ACM CHI Conference on Human Factors in Computing Systems

セッション: Negotiating Health, Identity, and Belief

P1 - Room 113
7 件の発表
2026-04-14 18:00:00
2026-04-14 19:30:00