The Odyssey Journey: Top-Tier Medical Resource Seeking for Specialized Disorder in China

要旨

It is pivotal for patients to receive accurate health information, diagnoses, and timely treatments. However, in China, the significant imbalanced doctor-to-patient ratio intensifies the information and power asymmetries in doctor-patient relationships. Health information-seeking, which enables patients to collect information from sources beyond doctors, is a potential approach to mitigate these asymmetries. While HCI research predominantly focuses on common chronic conditions, our study focuses on specialized disorders, which are often familiar to specialists but not to general practitioners and the public. With Hemifacial Spasm (HFS) as an example, we aim to understand patients' health information and top-tier medical resource seeking journeys in China. Through interviews with three neurosurgeons and 12 HFS patients from rural and urban areas, and applying Actor-Network Theory, we provide empirical insights into the roles, interactions, and workflows of various actors in the health information-seeking network. We also identified five strategies patients adopted to mitigate asymmetries and access top-tier medical resources, illustrating these strategies as subnetworks within the broader health information-seeking network and outlining their advantages and challenges.

著者
Ka I Chan
Tsinghua University, Beijing, China
Siying Hu
City University of Hong Kong, Hong Kong, China
Yuntao Wang
Tsinghua University, Beijing, China
Xuhai "Orson" Xu
Columbia University, New York City, New York, United States
Zhicong Lu
City University of Hong Kong, Hong Kong, China
Yuanchun Shi
Tsinghua University, Beijing, China
DOI

10.1145/3706598.3713315

論文URL

https://dl.acm.org/doi/10.1145/3706598.3713315

動画

会議: CHI 2025

The ACM CHI Conference on Human Factors in Computing Systems (https://chi2025.acm.org/)

セッション: Technologies for Sustainable Development

G414+G415
7 件の発表
2025-04-29 01:20:00
2025-04-29 02:50:00
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