Health Data in Fertility Care: An Ecological Perspective

要旨

Fertility tracking and technology are characterized by logging varied health-related data potentially associated with female fertility cycles. Such data are often seen as private and restricted to the individual level. We conducted an interview study with 21 people (16 in the U.S.) facing challenges to conceive and 5 U.S. healthcare providers specialized in infertility to analyze (in)fertility experiences with data. Our findings suggest that although fertility data are considered personal and private, they are embedded in larger ecological systems of use, influencing and being influenced by different stakeholders, institutional contexts, and sociocultural factors. Leveraging the Ecological Systems Theory, we analyze the relationships and factors shaping individuals’ fertility trajectories, discussing how the different layers influence the work individuals have to engage and the burden imposed on them through various social, institutional, and cultural boundaries. We propose an ecological perspective on fertility data practices and discuss opportunities to counter-influence broader environmental systems through data tracking.

受賞
Honorable Mention
著者
Mayara Costa Figueiredo
University of California, Irvine, Irvine, California, United States
Yunan Chen
University of California Irvine, Irvine, California, United States
DOI

10.1145/3411764.3445189

論文URL

https://doi.org/10.1145/3411764.3445189

動画

会議: CHI 2021

The ACM CHI Conference on Human Factors in Computing Systems (https://chi2021.acm.org/)

セッション: Personal Health Data

[A] Paper Room 07, 2021-05-10 17:00:00~2021-05-10 19:00:00 / [B] Paper Room 07, 2021-05-11 01:00:00~2021-05-11 03:00:00 / [C] Paper Room 07, 2021-05-11 09:00:00~2021-05-11 11:00:00
Paper Room 07
12 件の発表
2021-05-10 17:00:00
2021-05-10 19:00:00
日本語まとめ
読み込み中…